10. My Christian Testimony Concerning Autism (Birth to 52 Years)


By: Carole Norman Scott

Ben rolling his cars!

When we began to notice some changes in our two-year old son’s play and behavior, we wondered what was happening to our darling little red-haired boy.  He had been born on the fourth of July, and was truly a “firecracker”… in every sense of the word!  He had learned to talk, even in sentences, but we noticed regression in his communication, and in other areas too.  Earlier, when his dad had said, “Hi Ben, how’s my little sunshine, he had answered, “I not a sunshine, I a cloud.”  We had thought that was so smart…that he knew those concepts and their differences at that early age.  The promise of high intelligence was there.  At first his speech seemed to falter, then gradually his skills in carrying on a conversation were lost altogether.  A bizarre speech pattern called echolalia emerged instead.  As he became incapable of putting his own thoughts into words, he seemed confused, and repeated only what was said to him in a parrot-like fashion.  Rather than playing, his behavior evolved into bizarre, ritualistic routines that were meaningless to all but himself.   He would flip a string for hours, or roll his little cars back and forth, observing only the turning of the wheels.  As though trapped in his own little world, he lost eye contact with us, and treated us almost as strangers.  We felt absolutely helpless, not knowing how to stop the onslaught, or any way to minister to his needs.  It was like slowly watching him die before our very eyes, and not knowing what to do about it.

Ben-3, his sister Maureen- 5

We started our rounds of doctors and clinics trying to find help for Ben when he was three. We didn’t get a diagnosis until he was four, and then we were told that he was “autistic”…a word we had never even heard before.  We could certainly not fathom the far-reaching effects of such a disorder.  I remember going to the library and looking it up in a book, and it was not encouraging.  It described autism as “a profound, life-long malady characterized by non-communication, self-absorption and  in some cases, self-destructiveness.” The children afflicted didn’t relate or perceive situations as other people do, and their learning and social skills were also greatly impaired. The doctors didn’t know what caused it or what to do about it.  Their theory at the time (1966) was that “Mama did it!” They even had a name for us, and it was “refrigerator moms!”  If that wasn’t bad enough, they assumed that both parents were unusually cold and unfeeling people, and the child reacted by withdrawing into himself as a protection from this world because he felt unloved.  Along with that revelation came this piece of advice…“Take him home and treat him as normal as possible.”

Needless to say, I felt a complete and utter failure at my highest calling—being a good wife and mother.  Being told that I could have caused something this severe in my own child was almost more than I could bear.  I felt in my heart this couldn’t be true, because I knew how much I loved Ben, but I also knew that as a mother, I could think of some things I wished I had done differently.  I figured that these doctors were experts in their field (some were psychiatrists), and they must know something I didn’t know, or maybe they saw something in me that I didn’t see!  I began to let it “eat” on me.  I was twenty-nine years old at the time.

More recently, I read a book by Erma Bombeck where she said that she had missed out on being named “Mother of the Year” by three votes, all cast by her own children!  I can laugh about that now, but I couldn’t have back then.   It just about did me in.  My self-confidence was nearly shattered.  Thankfully, my persevering nature came to the fore.  I gave myself  a “pep-talk” and said, “Carole, if you cave-in now, Jay  won’t have a wife, Maureen won’t have a mother, and Ben won’t have any family to care for him as a unit.”  I pulled myself up by bootstraps and said, “Get with it Carole, and keep going!” 

I did “keep going,” but I felt real fear, frustration, and anger at God for letting this happen.  It wasn’t  fair to Ben, or to any of us.  I asked God to take away the problem…to make Ben well.  I actually expected to get up the next morning and see him talking and playing like other little children, but it didn’t happen.  I couldn’t understand why God would allow a thing like this happen to an innocent little child, and I couldn’t think of anything bad enough I had done to deserve this severe a punishment.                            

Ben’s class at Bost school–he is on the left, front row

As time went by, Ben didn’t fit into any already established educational  programs.  He was so unique that no one knew how to deal with him.  He was able to go to a regular pre-school and kindergarten, but he never related like the other children.  At age seven, he entered the Bost School for Limited Children in Ft. Smith, AR.  They were very kind to him and worked lovingly with him.  He improved and related more in all areas…although the curriculum was still not geared to his specific needs, and there were no other children there like him.  Unfortunately, as he progressed, he seemed even more frustrated.  We began to get calls from the school saying that he was disrupting the class and didn’t fit in, and, “Would you please come get him?”  He was about ten years old at the time.  He would attend school on an “on-again, off-again” basis, and I began to feel a dread of each new day.  I felt like life was going to be endless days of uncertainty, unhappiness, and frustration.  I couldn’t make Ben do anything, and his behavior was not what I had always thought my children’s would be.  It was all too much.  I started hyperventilating; still doing all that was expected of me, but miserable inside myself, and constantly in a turmoil.

About this time, my next-door neighbor in Ft. Smith invited me to a Christian Women’s Club luncheon.  I thought I already was a Christian!  I had gone to Sunday School and Church all my life, had sung in the choir, memorized Scripture, and had lived in a Christian home.  I had also tried to live my life pleasing to God. But, when I heard the speakers month after month get up and tell their stories, I came to realize that I did not have the peace and serenity that they had. They all seemed to be going through very difficult times too, but they spoke of Jesus so personally, that it made me want “what” or “who” they had…desperately.  I heard myself saying quietly right where I sat, “Jesus, if I have never asked you into my life before, I am doing it right now!”        

I started to the Bible Studies that the group sponsors, and it was there, in the Bible, that I found the answers to my deepest questions.  I discovered that in Romans 5:6, it stated, “While we were yet sinners, Christ died for us.”  I hadn’t realized that sin could be even an attitude, anything that falls short of the character of God.  I knew that I had sinned by my anger and resentment towards God, as well as my fear and dread of the future.  I then asked God to forgive me, and He did.  I had memorized John 3:16 as a child.  It says, “For God so loved the world that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life.”  I found that I could now insert my own name in that Scripture…“For God so loved Carole Scott!”  I had never taken it personally, and realized that He loved me that much!  Then, I found that God had not caused Ben’s problems.  Again, in Romans 5:12, I found that it said, “When Adam sinned, sin entered the entire human race.  All things began to grow old and die, for all have sinned.”  That jumped out at me and told me that God created this earth in perfection for us, but because of man’s sin, God’s way was violated and all things began to grow old and die.  That is when sickness and death, autism, cancer, alcoholism…anything we deal with today… came into being.  God did not cause it, but He does allow it sometimes in our lives to draw us to Him.  He loves each one of us that much, and knows us each that well!                                                                                     

I found that “being good” could never have been enough to get me to heaven.  In Galatians 2:19, it says, “For it was through reading the scriptures that I came to realize that I could never find God’s favor by trying, and failing, to obey the laws.  I came to realize that acceptance with God comes by believing in Christ.”  I also found that in II Corinthians 5:17 it says, “When someone becomes a Christian, he becomes a brand new person inside.  He is not the same anymore.  A new life has begun.”  My sins were forgiven…my slate wiped clean!

Knowing this forgiveness and love of Jesus, and His acceptance of me just like I was/am, helped me in my relationship with Ben.  I saw that I wanted him well so badly (for his sake, as well as for ours), that I was not accepting him for himself.  I was then able to ask Ben to forgive me, and he just looked at me with great big eyes that said, “Mom, it’s OK.” It reminded me of God’s forgiveness, and confirmed to me the promise found in 1 John 1:9 that says, “If we confess our sins, He is faithful and just to forgive us, and to cleanse us from all unrighteousness.”

Ben at 13

I wish I could say that Ben’s problem miraculously went away when I became a Christian.  I think we’re sometimes led falsely down that pathway. When Ben was thirteen, he began to have “rage-type” upsets that we could not manage at home.  He was sweet-natured and calm most of the time, but the upsets were unpredictable.  It became apparent that it was time to find him a “home away from home!”  That was absolutely the hardest thing that I have ever had to do in my life.  He could not communicate his needs.  He felt pain, but did not react to it or report it, and I worried over how he would even stay alive.  He had gone everywhere with us, and had played a major part in my life.  I felt as though I was giving up on him, and that every hope I had ever had for his recovery was dashed!  I agonized over this, and one day as I was reading my Bible, I came across a Scripture in Philippians 4:6-8 that said, “Don’t worry about anything, pray about everything.  Tell God your needs and don’t forget to thank Him for His answers.  If you do this, you will experience God’s peace, which is far more wonderful than the human mind can understand.  Let His peace keep your thoughts and your heart quiet and at rest as you trust in Christ Jesus.”  I claimed and dated this Scripture, and tried my best to put it into practice.  I would be lying if I said there were not many sad times, and many tears shed when Ben moved away.  It was almost as though he had died, and there was no “rite of  passage” to help us through it.  People were not aware of how to minister to our needs.

Again, the Lord worked all that to our good, and to Ben’s.  The Bible promises in Romans 8:28– “All things work together to the good to those who love God and are the called according to His purpose.”  It was Ben’s problem in the first place that brought me to the Lord, and it was his going away that changed my husband’s life too, and brought him to Christ. He had always been pretty much a “self-made” man, but this was one thing he absolutely could not control.  It also got us into a Bible-teaching church because of our deep needs. What seemed for a while like an ending for Ben, really turned into a new beginning. 

The “Colony” where Ben lives…a church in the center, cottages all around

The Lord provided the “just-right” place for Ben and then gave us His peace in the midst of the many overwhelming circumstances and changes involved.  Ben moved to the Conway Human Development Center in Conway, AR. (lovingly referred to as The Colony), in February of 1976.  He has lived there for thirty-eight years, and is now fifty-two years old. About one year after his arrival there, they started a program for autistic children and adults, and he began to get the Behavior Modification and “one-on-one” training that he had always needed, but had never received…even in his special-school settings.  Over the years, God has provided a calm spirit for Ben so that he has been able to come home for a week to ten days…at least every three to four months.  He has also opened the way for him to obtain job-placement skills, and has surrounded him with caring people as his instructors and caregivers.  All this has helped give Ben a new enjoyment of life.  Thankfully, some of the breakthroughs so longed for in the past have finally begun to form.  He is now able to show affection more appropriately. All through the years, Iwould say, “I love you Ben”, and he would just repeat those words back to me mechanically.  Recently, he blurted out, “I love you Mom” in response.  That was a first for him, and a great joy to me after all these years! He is also able to relate to people and situations more accurately, for which we are truly thankful. He still may have a long way to go by this world’s standards, as his perceptions of situations leave a lot to be desired sometimes, but progress IS being made!

Ben at 27

The Lord uses Ben just as he is, and is still putting him with people who truly care for him. He has given me chances to share with them what He has done for us, and can do for them too.  One particular incident proves that point.  Although it happened many years ago, it is a perfect example of how the Lord has continually provided for our needs. When Ben hadn’t been at the Colony very long, I spoke at the CWC luncheon in Little Rock, AR.  I told them how the Lord had worked in my life through Ben’s problem, and when I got through, a woman came up to me and said, “My sister-in-law just went to the Colony to be the new Pediatrician there, and I’m going to tell her about you, and about Ben.”  Several months went by, and Ben came home for a visit.  I noticed that he had a terrible ingrown toenail.  We had it treated at home, but when I took him back, I took him to the clinic to let them see what had transpired.  When I told the doctor my name, she said, “Oh, are you the one, and is this him?”  From then on, whenever I called down there to check on Ben, the doctor knew who I was, and more importantly, she knew who Ben Scott  was out of the 1,000 other clients living there at that time.   She read through his file, and knew all about his particular needs.  That could only have been the Lord’s answer to the Scripture I had claimed earlier.  The fact that they recognized Ben there on a personal basis was such a comfort to me, and God knew that!  It reminded me of a Christian speaker I had heard named Major Thomas.  He said that, “God has friends everywhere.”  Sometimes we think we are the only ones that can handle a situation until we are put in a circumstance where we cannot do anything about it, and we must trust God only.  He proves to us then that He has friends everywhere to help take care of our needs, and the needs of those we love.

John & Ben (brothers rough-housing in fun).

I’m afraid I did not have four children, two years apart, as originally planned…Ben made up for two.  We did have another baby though.  A little boy named John who is five years younger than Ben.  He responded normally in every way, as did his older sister.  I can say thankfully, that for every perceptual problem that Ben suffered, Maureen and John were blessed with an extra measure of reasoning, a gift much needed to help them cope with being Ben’s siblings.  They are grown now and on their own.  They are both CPA’s like their dad.  They are also Christians, and although their lives have not been easy, they have been able to cope and maintain a sense of humor, and for that I am truly grateful.  Maureen is now divorced after twenty-three years of marriage.  She has two girls who are a joy to us—Shannon, twenty, and Kelly, eighteen.  Ben enjoys being around them so much and seems to relish being “Uncle Ben.”  John was married for three years, but has been divorced for nineteen years.  I don’t understand why things happen as they do, but have found myself claiming some of the same Bible promises for them that I do for Ben. 

My husband and I will celebrate our 57th Anniversary in January ’15.  I am so thankful he is still with me, because I have come to realize that many men cannot take the burden of having a handicapped child, and don’t stay around for “the duration.”  (In fact, many fathers of “normal” children don’t for that matter!)  I love and appreciate him more every day.

      Today, forty-eight years after Ben’s first diagnosis, the professionals no longer blame “Mama,” but now say that autism is caused by a chemical imbalance, a neurological impairment to the brain, or a genetic disorder.  There is still no known cause or cure, and much research is being done.  More and more children are being diagnosed as autistic.  In 1966, the statistics showed that 1 in 10,000 children were autistic. A recent article quoted the number as 1 in 80.  People are now more aware of the problem…through movies and television shows that try hard to depict the affliction accurately. I am grateful that I did not have a nervous breakdown all those years ago over the doctor’s theories, but kept persevering until God could show me that “His strength shows up best in my weakness.”  I am thankful that He knew all my family, and put Ben with us for a reason—for his benefit, as well as for ours!

Ben at age 50

We still must trust God daily in regard to Ben, as he is still VERY much a part of our lives. We pray for a calm spirit for him, as his upsets still DO occur periodically.  In the past few years, they have been reported to happen at his living facility with great intensity and no warning. THAT is of GREAT concern. So, in 2013, we visited a smaller facility in Springdale, AR that housed only 10 people instead of the 30 that Ben had been living with. It was quieter and more home-like.  With the encouragement of the staff at the CHDC, we moved Ben. All felt it was his chance to live a more normal and peaceful life. It all went GREAT for 2 months. We heard the most glowing reports we’d ever heard, and then the upsets started again, and escalated until it was necessary to move him back to his former living facility. There was one major problem. It was now necessary to go through a committee to get him placed back where he had lived for 38 years (as there are other HDC’s in Arkansas too). We had applied in November of 2013, but had heard nothing all through December, and it was crucial that something be done. I wrote a letter to the committee about how important it was for Ben to be back with the people who knew him well and loved him, but before I sent it, I put it on Facebook for my friends to be praying about it. A young woman who had been our neighbor in Ft. Smith as a child and was about Ben’s age saw my letter and contacted me. I was “friends” with her mother on Facebook. I had not seen or heard from the daughter for almost 40 years though. She just “happened” to work for an Arkansas Congressman in Ben’s district.  She asked if we would like her to send my letter to the committee and to the DDS Commissioner for Arkansas on the Congressman’s letterhead. Of course we consented.  It was only a week later that the committee had their meeting and we heard from them that Ben was to be placed back at the Conway Human Development Center, and not only that…but in the very same living unit…and in his very same private room.  Again, God has friends EVERYWHERE and is with us every step of the way!  Ben moved back in January of 2014, and has been there for over a year.  They have started him on Risperidone (Risperdal), and we were told at his recent staffing meeting that the last 3 months had been calm for him.  What music THAT was to our ears.  Such a wonderful respite for Ben, for us, and for all who care for him.  He was home with us for Christmas 2014, and did GREAT!

All the Scott family at the Olive Garden Christmas Eve--2014

All the Scott family at the Olive Garden Christmas Eve–2014

When home, he has been able to go shopping with me, visit friends, help me at the grocery store, and is my “antiquing” buddy.  He never complains or says, “When are we going home?”  I think he would shop ’till he dropped!  He helps me sort and do the laundry, puts the dishes away out of the dishwasher, and runs the vacuum cleaner.  When we go to Kansas City to visit relatives, he helps me unpack when we get home.  He hangs up all the clothes, put all the toiletries away, and makes sure everything is in its rightful place.  He is at times able to generalize information learned in specific categories to other areas of his life, and for him—compared to how he used to be, that is a major breakthrough. Most important to me, he loves to go to church with us and is even beginning to sing the hymns that we didn’t even know he knew.  Periodically, he may even say something profound of a spiritual nature of his own free will.  I began to wonder just what Ben did understand about Jesus, so several years ago I ask him, “Ben, what did Jesus do for us?”   I didn’t know what to expect in reply.  He looked me right in the eye, but said nothing.  I started the sentence for him (because he can sometimes finish it or insert the appropriate word).  I said, “Ben, Jesus —-.”  He haltingly said, “died.”  I said, “on the —–.”  He added, “cross.”  I said, “For our —-.”  He blurted out “SINS!”  You can imagine my delight!  I feel that Ben does know Jesus personally and understands in his own way what He did for us on the cross.  I feel of one Spirit with him.  It made me think long and hard on how simple the message really is.  It also made me realize that although he may be limited in the mental, emotional, and perceptual areas of his life…in the spiritual realm, he is whole and healed.   In the whole scope of this life, that is really the most important issue.  I am thankful God chose to heal him first in that manner.

 Ben about said it all when he said, “Jesus died on the cross for our sins,” but there IS a little more to it.  He also was buried, arose from the dead, ascended into heaven, and sits at the right hand of God the Father.  And thankfully, He’s coming back!   He promised us in John 14:16-18, that when He went to be with the Father, He would send us another Comforter.  He would not leave us like orphans in this storm of life.  That Comforter is the Holy Spirit that comes to live in us when we ask Jesus into our hearts.  I am so thankful for this provision because the problems with Ben have been ongoing.   It would be easy at times to go back to my old pattern of fear and dread of the future if I didn’t know the presence of that Comforter personally.  There is talk periodically of closing the Colony like they did Hissom, in Tulsa. Several years ago there was a court hearing, and a Judge ruled to keep it open.  We don’t know though how long that will stand. We still get calls from time to time that report bad news.  Several years ago, Ben broke his arm in three places while in the midst of an upset.  In the past five years, he has had several grand-mal seizures.  He has also suffered from severe esophagus and acid-reflux problems. 

 In July of 1997, I was diagnosed with Non-Hodgkin’s lymphoma and underwent six months of oral chemo-therapy.  In March of 1999, it reared its ugly head again and showed up in my stomach and abdominal cavity.  I then wrestled with the heavy-duty, intravenous chemo, lost my hair, and dealt with all its other side-effects. In 2003, the largest tumor ever appeared, and I went through that whole chemo procedure again (again losing my hair).  Then, in 2004, the doctors recommended a stem-cell transplant, and attempted it twice, but my body would not produce the baby stem-cells needed for a successful outcome.  That plan had to be aborted, so it was “totally” in God’s hands.  My testimony in a “nutshell” is: “Here I still am!”  I tell you this to remind you that nobody ever knows what tomorrow will hold, so if you hear a message about Jesus, please take it seriously, and ponder it long and hard.  Jesus Himself said in John 16:33, “Here on earth you will have many trials and sorrows,” but then He ended that thought with this wonderful promise, “But cheer up, for I have overcome the world!”

 It dawned on me recently how wonderfully God has provided a way for us to “live happily ever after.”  It is not a fairy tale.  It is the truth, straight from the Word of God.  That is the abundant life right here on earth, with the Holy Spirit living in us right now, and the promise of eternal life when we go to be with Him when we die! We don’t have to wait until we stand before God…we can know right here and now.  In John 5:24 Jesus says, “He that hears my words and believes on Him that sent me, has eternal life and shall not pass into condemnation, but has already passed from death unto life.”          

When I pondered just what to share in my testimony, I found it difficult to “boil” forty-eight years down into just a few words or pages.  I decided that the most important issue to leave with you is… JESUS DOES MAKE THE DIFFERENCE! This is NOT about Autism or Lymphoma, but about JESUS! He has given me a peace and serenity in the midst of all the trials, and  I don’t have to go on my own perseverance any more.  You can have all of that today too, if you will receive Christ as your Savior and Lord.

I want to leave you with one last Scripture from Romans 10:8-10 that I think “says it all!”  “For the salvation that comes from trusting Christ is already within easy reach of each of us; in fact, it is as near as our own hearts and mouths.  For if you tell others with your own mouth that Jesus Christ is your Lord, and believe in your own heart that God has raised him from the dead, you will be saved.  For it is by believing in his heart that a man becomes right with God; and with his mouth he tells others of his faith, confirming his salvation.” 

I am going to pray a prayer concerning those who read this blog…very much like the one I prayed thirty-nine years ago.  If you feel led, you can pray it along with me as you read it.  Just repeat it, quietly within your heart, and receive Jesus into your life right now:  

 “Dear Lord, I understand now that I am a sinner, and that You sent Your Son Jesus to die on the cross for my sins.  I ask You to forgive me.  Jesus, I now ask You to come into my heart and my very being, and take complete control of my life.  I thank You that I now know that I have eternal life through You, and that Your Holy Spirit now lives in me to teach, convict, and comfort me.  Thank You Jesus.”

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New Med Working–A Calm Respite


We just had Ben’s yearly staffing meeting on Thursday 2/19/15. They are so organized at the Center where he lives, and had a staff person from every area of his life to tell us how he was doing.  The GOOD NEWS is that he has had 3 good months with no aggressive behavior since he was put on 1.5mg a day of Risperadone (along with MANY prayers).  He DID get to come home for Christmas in that time period and did GREAT! Just had to post this in praise to God for a calm respite for Ben AND for us!

Ben (L), Maureen & John Christmas, 2014

Ben (L), Maureen & John Christmas, 2014

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A Scripture For Encouragement In Dealing With Autism


I read this Scripture again today (from the LIVING BIBLE), and found that I had written dates beside it–claiming it–in 1980, 1984, and again in 1987.  I have continued all through these following years to claim it, and thought it might be of help to you who are also dealing with the problems and heartaches of Autism.  God bless you and your loved ones, and may it speak to you…deep down in your souls!  

Romans 5: 3-5

“We can rejoice, too, when we run into problems and trials for we know that they are good for us–they help us learn to be patient.  And patience develops strength of character in us and helps us trust God more each time we use it until finally our hope and faith are strong and steady.  Then, when that happens, we are able to hold our heads high no matter what happens and know that all is well, for we know how dearly God loves us, and we feel this warm love everywhere within us because God has given us the Holy Spirit to fill our hearts with his love.”

In the beginning verses of that chapter (1 & 2) it says, “So now, since we have been made right in God’s sight by faith in his promises, we can have real peace with Him because of what Jesus Christ our Lord has done for us.  For because of our faith, He has brought us into this place of highest privilege where we now stand, and we confidently and joyfully look forward to actually becoming all that God has had in mind for us to be.”

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Autism — Ben Understood About My Health–By: CNS


Ben & Me--2014

Ben & Me–2014

When Ben was home at Christmas, I honestly told him that I couldn’t do the things with him that we usually do together–i.e. shop, get in and out of the car, and go, go, go, etc. My back hurt too bad.  He seemed to understand fully, and was patient and calm.  We also didn’t keep him at home as long as usual because of my health (6 days instead of 10).  I am full of awe today as I write this…that God is always thinking about us, and cares about everything that concerns us (I Peter 5:7 LB).  I just had to give the Lord another Praise, and speak out in His behalf, because I had a Heart Catheterization test yesterday because of some severe pains in my chest that I had recently experienced.  It was the “definitive” test…as it shows all the chambers of the heart (through dye being inserted through the groin artery), and also checks the rhythms of the heart, etc.  It was quite a procedure, and my back had recently been dealing me havoc because of a severe muscle spasm that required muscle relaxers, pain meds, and prednisone.  I am here to attest to the fact that I made it through the test just fine (in fact, I slept almost ALL the way through it because of some med they gave  me intravenously).  The outcome was what I wanted to share with you…NO BLOCKAGES IN ANY OF MY HEART ARTERIES!  It has been 11 years since an attempted stem-cell transplant failed (in order to “beat” the Non-Hodgkin’s Lymphoma I had been battling for 6 years before that), so I am proof that we will be here until our allotted time.  The Bible says in Psalms 139:13-16 LB, that God watched us being formed in our mother’s womb, and has our days numbered in His book.  I believe it.  Don’t “squirm” over Doctor’s pronouncements about your health and length of life.  GOD IS IN CONTROL!

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2014 in review


The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog.

Here’s an excerpt:

A New York City subway train holds 1,200 people. This blog was viewed about 4,900 times in 2014. If it were a NYC subway train, it would take about 4 trips to carry that many people.

Click here to see the complete report.

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Ben’s Christmas Visit–12/23-28/2014


All the Scott family at the Olive Garden Christmas Eve--2014

All the Scott family at the Olive Garden Christmas Eve–2014

Ben & Jay (my husband) just left this morning to take Ben back to his living facility in Conway, AR…after a Christmas visit of 6 days.  I just had to write and PRAISE THE LORD that Ben (52) got to come home once again (remember when I wondered last July if that would ever be possible again after he got upset and had a behavior incident at home and again, when he got back to his living facility)?  My husband picked him up on Tuesday, Dec. 23rd, and he looked good.  He looked healthy and his eyes were bright.  We didn’t know what to expect because he had been put on Risperadone last July, and I had read about all the possible side effects.  He was calm and peaceful, and we got him cleaned up, trimmed, and he then took a nap (we ALL did).  After supper, we watched TV (ballgames and other shows) together.  The next morning, Ben went to wash the car with his dad, and then had a good nap before the rest of our family came (our older daughter from KC with her 2 daughters, 18 & 20).  Our younger son came too, and we all were able to go to the Olive Garden Restaurant to eat our Christmas dinner together.  Ben loved it and when asked what he wanted to eat…answered, “Sagnia” (lasagna).  We went back home and opened our presents after that.  Our daughter gave Ben a KC Royals Championship Hat, and he put it on and wore it the rest of the evening.  Then, we had brownies with mint/chip ice-cream on them (his favorite).  We didn’t venture clear downtown to Church for the Christmas Eve service like we have in the past because that might have just been TOO much (LOTS of people there).  But, Christ was in our hearts, and we were praising Him for coming to Earth for our Redemption, and also…for the joy of us all being able to be together again.

Ben (L), Maureen & John Christmas, 2014

Ben (L), Maureen & John Christmas, 2014

On Christmas Day, we took it easy and then all enjoyed a time of fellowship around the kitchen table eating chili and hot-dogs…before the rest of the family had to leave to go home.  Ben got up of his own accord to come outside to “see them off!”  I could tell he loved being with them again.  On the day after Christmas, he slept a LOT (more than usual), but I thought it was just that he was worn out from all the activities.  On Saturday, he slept even more, and his eyes looked as though he might have a migraine headache or a sinus infection (he never complains or tells you where he hurts…only goes to sleep).  When we mentioned going to Braum’s (ice-cream and hamburger place) for supper, he perked up though and seemed to feel better the rest of the evening.  Maybe he just had the after-Christmas “let down” like we all do, or was taking advantage of resting in the peacefulness of “home” while he had the chance!  Whatever–I called his living facility this morning after he and Jay left and told them I wanted Ben to go to the clinic tomorrow and be checked…just in case.  I just talked with my husband, and all went well on their trip back to Arkansas (a 4-hour trip each way).  Ben did great and seemed OK about going back.  What a blessing–THANK YOU LORD!  

Ben on Christmas Eve--2014

Ben on Christmas Eve–2014

 

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OUR RECENT VISIT WITH BEN–10/28/14


IMG_0625I just want to give a “Praise the Lord” about our visit with Ben 2 weeks ago.  We went…not knowing what to expect, or how we would handle what we found (since his last visit in July when he got so upset).  He looked good in his eyes and being, and was calm and peaceful when he greeted me/us with a hug.  We felt confident enough to take him out overnight to a hotel like we always have in the past. I told him that was what we were going to do, and that we would eat at Chili’s and go shopping…just so he’d know what to expect.  At the Hotel, we got him cleaned up (home clothes), trimmed (neckline, ears, nose, etc.), and let him take a nap for a while.  We rested too–from our trip, and the stress the “wondering what might happen” aspect involves.  Then, we set out and went shopping at several stores, ate at Chili’s (he gets chicken fingers, mashed potatoes and gravy, and corn-on-the-cob each time).  Then,  it was back to the hotel to watch the Royals and the Giants in the World Series (Ben likes watching baseball, and we’re from Kansas City)…so that was pleasant and exciting.  Then, it was time for bed and a good rest.  We were blessed to find a hotel that has a 1-bedroom suite…the bedroom separate from the living room…which has a pull out divan for Ben (because he snores…LOUD).  He slept well too, and the next morning, we ate at the hotel, and then took him back to his living unit…having told him that we would come and take him home for a visit at Christmas.  He went on to his room peaceably to hang up his jacket, and we have not gotten any calls to the contrary since then.  I checked with the Social Worker recently, and all was going well. What a relief and blessing! They DID “up” his Risperdal by .5mg. about a month ago, as he was still having problems then.  Whatever happens, it was wonderful to see him doing so well again, and to continue with the pleasant visits we’ve so long enjoyed.  THANK YOU LORD!

The "Colony" where Ben lives...a church in the center, cottages all around

The “Colony” where Ben lives…a church in the center, cottages all around

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Aggression Rears Its Ugly Head–By Carole Norman Scott–7/22/14


Ben & his dad (Jay) in the swing at home.

Ben & his dad (Jay) in the swing at home

Ben is having a really rough time right now…needing restraint, and generally NOT HAPPY! He has to have his big toenail removed next week due to an in-grown toenail and fungus. We need prayer that God will give all concerned wisdom and strength to endure (including peace for Ben). They are checking his Depakote & Tegretol levels, and the Psy. Examiner is going to talk to the Psychiatrist about the Keppra he’s on for seizures too. His hands and arms have tremors and they think one of these might be the culprit. He started the aggressiveness as soon as he went back from his birthday visit (and he was home for 8 days and did SO well).  My husband took him back, and when he was in Ben’s bedroom there putting some things away, Ben came into the room wild-eyed and pushed him (he’s 76), and he thankfully fell across Ben’s bed, but then bumped his head on the cement window sill. Ben has NEVER been aggressive with us or anyone here at home since he moved away so many years ago, but this scares us to bring him home again if he attacked even Jay (husband).  It dazed Jay at the time, and somehow, he was able to get around Ben and leave the living unit, but he had a 4 hour drive ahead of him.  He was pretty “shook up” when he got home (but DID get home safely)!  From Tulsa to Conway, AR…is 4 hours.  He had already driven 4 hours when this happened.  It was a scary experience, and he didn’t see it coming.  He’s had no bad after-effects—PTL!  I’m wondering if Ben somehow later realized what he had done, and is now upset about it, but that may not be the case at all.  I don’t think he pushed Jay because it was Jay…but when he gets in that state…it’s whoever’s in the way, so “WATCH OUT

Oh Lord, this opens a whole new problem…if Ben can’t come home for visits…how will we check on him, and what will become of him. We have been in a grieving mode (again, almost like he’s dead to us)…even yet knowing that GOD is in control, and has a plan that we just can’t see right now. God’s mercies are new every morning. Ben is 52 now, and we wonder if something new is going on in his body that he can’t tell us about. But, how does he stay calm at home if he can’t control it there? We are as puzzled now as we were 38 years ago when he had to move away from home. SO sorry if this is not encouraging to all reading…but it’s what’s happening. He would miss seeing relatives, going places — out to eat (and helping me with grocery shopping and fixing food at home), going to church, to the movies, and just being home and loved, etc. Oh Lord–have mercy on Ben and on all families dealing with autism. It is SO grievous, and SO hard to find the right help. Only YOU know what all it entails, and we beseech You to help us ALL in our hour of need–Hebrews 4:14-16 “For we have not a High Priest which cannot be touched with the feeling of our infirmities, but was in all points tempted like as we are, yet without sin. Let us therefore come boldly unto the throne of grace that we may obtain mercy, and find grace to help in time of need.” PS He just may NOT want to be at his Living Facility, but this lets us know for SURE that if we brought him home for long periods of time…we could NOT handle it if he got violent!  He was having trouble BEFORE he came home too!

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